My Epileptic Life

What comes to your mind when you hear the word Epilepsy? Do you think the person is weird because they have a disorder they have no control over? Epilepsy which is sometimes called a seizure disorder, is a disorder of the brain. The cause of epilepsy is still unknown.
In middle school I was tested for seizures. After moving to a new town and a new school my parents noticed my grades slipping. Over the years plenty of tests were done on me not just once but twice. I had a video EEG (electroencephalogram) done that showed I miss 75% of my day. It was no wonder I was failing my classes. The neurologist put me on a medication to see how it worked and that I needed to return back for a follow up.
In high school my grades still weren’t the greatest. Also during my middle school days I missed some school due to my seizures. I remember one day I was out riding my back and the next thing I knew I flipped over the handle bars and hit my head on the concrete. The result in that happening was a concussion and 6 staples in the back of the head. Then when I was a freshman in high school it was a nightmare for my parents. All I remember from that one night was going to my room to get into my pajamas. From there everything was told by my parents. My dad heard a loud thud come from my room. Come to find out I hit my head on my dresser. My dad and uncle found me passed out and grey; also not breathing. My parents called 911 and the EMS came and got me. Of course they ask questions like what day is it or what’s your name? They went to the hospital and I had tests done. They sent me home and come to find out I wasn’t even home for 15 min and was passed out again. This time I didn’t even know what happened. I didn’t realize what happened until I noticed I was put in the hospital overnight for evaluation. The next day I was able to go home but needed to take it easy.
Over the years with all the doctor visits and all the tests I was put on a total of 6 different seizure medications. I’ve been on Depakote (made me gain a lot of weight), Zarontin, Lamictal, Keppra, Dilantin (was taken off because it causes your teeth to rot), and last but not least Topamax. All of these didn’t even help me. They would help fior a little bit but my body got use to the medicine.

Normally I don’t know when a seizure is to come about. It just happens out of nowhere. With having seizures you are limited on things you are able to do. For instants driving; doctors have to approve you to be able to get your license. You can’t be around strobe lights because it can trigger a seizure. I don’t ever tell anyone I have epilepsy even though I should so they are aware. I just don’t want anyone feeling sorry for me or babying me. Now that I’m an adult I’ve choose to not take any medications or see doctors. When I was younger I couldn’t tell when a seizure was coming on. Now that I’m older I can tell when I’m about to have one. My whole body feels really strange and my head feels huge. Normally my seizures are like me daydreaming . I’ll talk weird and ramble on nonsense and when the seizure is done I’ll be confused on what I was doing.
DID YOU KNOW:
Did you know that even famous people like Vincent Van Gogh, Sir Isaac Newton, Napoleon Bonaparte, Charles Dickens, Edgar Allen Poe, Leonardo Da Vinci, Michelandgelo, and Julis Caesar all had epilepsy as well. It’s crazy to think that legends like these men suffered with seizures and overcame all the obstacles thrown their way and came so far. Having epilepsy obviously didn’t stop them from achieving their dreams. They came out on top.

EEG- is a test that detects electrical activity in your brain using small, flat metal discs ( electrodes) attached to your scalp. Your brain cells communicate via electrical impulses and are active all the time, even when your sleep. This activity shows up as wavy lines on an EEG recording.

 

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